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We believe that all children with life-threatening conditions should have access to the care and emotional support they need to live life as fully as possible. Click here
Posted Saturday, February 23rd, 2013
One of the many things that happens for families when a child is sick is that their former social relationships change. I think it takes awhile for a parent to let go of only seeing their child as “ill” and so there is this idea of binocular vision, a kind of double vision of what was, and what is now....Continue Reading
Those Precious Minutes
Posted Monday, September 24th, 2012
During my daughter Jillian’s 10 short years of life, she required quite extensive medical care. Based on my calculations we wasted over a month of time getting care in the traditional model (traveling to the clinic, finding parking in a crowded parking lot, waiting at the clinic for the appointment, having the appointment, waiting for the blood draw, waiting for the lab result, traveling back home, etc., etc. I haven’t even factored in the anxiety and stress attributed with going to the hospital and being admitted at times.) Over 4,000 minutes lost....Continue Reading
Posted Thursday, May 10th, 2012
Partners for Children pilot project proves to be successful in improving quality of care and cost effective to the State. San Diego Hospice’s Partners for Children Team, along with seven-and-a-half-year-old Anna Zeldin and her mom Debra, joined forces with the Children’s Hospice and Palliative Care Coalition (CHPCC) for Legislative Advocacy Day on April 17 in Sacramento. The day was organized by CHPCC to celebrate with legislators and policy makers the progress made to date, as well as to inform about the life-affirming importance of pediatric palliative care....Continue Reading
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