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  • Two girls - Courtesy of Moment By Moment

    Emerging Discipline

    Slowly but surely, pediatric palliative care is inching its way into mainstream medicine. Some say, “What’s the holdup?”
  • Small Mercies

    Small mercies: Medi-Cal Pediatric Palliative Care Pilot Program shows early success.

    UCLA research study preliminary results suggest dramatic increase in patient and family well-being as well as a significant cost savings.
  • Child - Courtesy of Moment By Moment

    1,000,000 Children in America live everyday with chronic, complex medical conditions.

    How do they and their families survive?  Read their stories here.
  • Child - Courtesy of Moment By Moment

    The Clock is Ticking on California’s New Medi-Cal Pediatric Benefit.

    Results boast cost savings and a better quality of life for children and their families.

  • Mission

    Listen to, partner with, and work together for children with serious illnesses and all those who care for them. Want to know how? Click here

  • Vision

    We believe that all children with life-threatening conditions should have access to the care and emotional support they need to live life as fully as possible.  Click here

Family Stories

seesaw in a garden

Teeter Totter
Posted Saturday, February 23rd, 2013

One of the many things that happens for families when a child is sick is that their former social relationships change. I think it takes awhile for a parent to let go of only seeing their child as “ill” and so there is this idea of binocular vision, a kind of double vision of what was, and what is now.

...Continue Reading

Hope Notes

An assortment of wrist watch faces on a wood background

Those Precious Minutes
Posted Monday, September 24th, 2012

During my daughter Jillian’s 10 short years of life, she required quite extensive medical care. Based on my calculations we wasted over a month of time getting care in the traditional model (traveling to the clinic, finding parking in a crowded parking lot, waiting at the clinic for the appointment, having the appointment, waiting for the blood draw, waiting for the lab result, traveling back home, etc., etc. I haven’t even factored in the anxiety and stress attributed with going to the hospital and being admitted at times.) Over 4,000 minutes lost.

...Continue Reading

Capitol Corner

Anna Zeldin, 7 and a half years old just celebrated a hundred consecutive days outside of the hospital with support she's receiving from the Partners for Children Program. This is the longest amount of time she's been able to stay out of the hospital in her life.

Making Headway
Posted Thursday, May 10th, 2012

Partners for Children pilot project proves to be successful in improving quality of care and cost effective to the State. San Diego Hospice’s Partners for Children Team, along with seven-and-a-half-year-old Anna Zeldin and her mom Debra, joined forces with the Children’s Hospice and Palliative Care Coalition (CHPCC) for Legislative Advocacy Day on April 17 in Sacramento. The day was organized by CHPCC to celebrate with legislators and policy makers the progress made to date, as well as to inform about the life-affirming importance of pediatric palliative care.

...Continue Reading

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